In my journey to live a somewhat normal life, I've learned that said journey is easier said than done. I've been battling with a myriad of new symptoms-- in the face, and especially in my arms. Not only have my symptoms been exacerbated, but my emotions have been as well. I'm finding it very difficult to gain the support I feel I need from the people I wish to get it from. With that said though, I am so very grateful to the wonderful girl friends I have who have made this transition an easier one.
I seem to find myself in the same position over and over again; certain that I can cling to others and forget what my future (my medical future) has in store for me. I keep finding out the hard way this is not so. How does anyone with MS do this? I feel incredibly vulnerable and sad all the time-- I've become a person I no longer recognize. Fear may be fueling these feelings, but am I going to be scared until I'm finally in a wheelchair or on my deathbed? There must be some solution to dealing with stress this severe and frightening.
Now I'm just mad.
Hey girl! First of all- you're not writing to yourself because I just added you to my google reader :). I wish I had some awesome encouraging words to give you- but honestly, I don't know what to say. I'm sorry you're going through this. In college, my friend Naicie told me once during a difficult time of my life that "you are a strong black woman, and you will get through this". Needless to say, I was a little confused...but Naicie explained to me that her mother used to tell her that during hard times to remind her of who she is...and while I still thought it was kind of strange (I mean, I'm not black, duh) I did appreciate the sentiment. So, Katie, know that we are with you and we love you. And I love the blog so keep going with it!
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ReplyDeleteI had no idea you were going through this! I work at Inova Fairfax Hospital and am very good friends with a woman who runs our Animal Assistance Program and who happens to be a Trauma nurse as well. Leslie is an amazing, beautiful woman and would be a wonderful resourse for you to have. I hope you will consider coming to NoVA at some point upon your arrival here in VA...I would be happy to set up a lunch date for us at the hospital and we could chat with Leslie about this disease. I know she would be a wealth of information! I will continue to follow your story; you are an amazing gal and I am sorry to hear of this news...but know too that you will do amazing things! Kim
I forgot to mention...Leslie has had MS for many years and is fully functional (yes, some 'bad' days but overall is 'perfect' (like you!) She will just be a wealth of info on how she lives with this disese and continues on with her career, life etc. She is married with several working dogs; one that assists her! Can't wait to hook you up with her...Remember Chris and Brian will have cars in Harrisonburg and come up to Northern VA A LOT! Easy to get you up here to chat with Leslie!
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